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All the entities below receive some funding from the Genetics Services Branch of the Maternal and Child Health Bureau, U.S. Department of Health and Human Services.

Updated 3/18/99

Genetic Alliance
4301 Connecticut Ave. NW #404; Washington, DC 20008-2304
800/336-4363 or 202/966-5557, Fax:-8553, info@geneticalliance.org
http://www.geneticalliance.org

The Alliance was established in 1986 as a nonprofit organization dedicated to helping individuals and families affected by genetic disorders. The Alliance Web site lists publications (many of them free), upcoming events such as meetings and conferences, and some 301 support groups in the Directory of National Genetic Support Organizations and Related Resources. This directory, which gives full contact information for each support group and links to other Web sites, is also available in hard copy.

Regional Genetics Networks

Within their regions, the ten networks coordinate genetic services; promote communication among genetic professionals and consumers through network newsletters, meetings, and other events; share resources; and promote education and awareness of genetic disorders.

Each network will answer inquiries about genetic evaluation and counseling services.

• Genetics Network of New York, Puerto Rico, and the Virgin Islands (GENES)

  Genetic Services Program; Wadsworth Center; Empire State Plaza, Room E299; P.O. Box 509; Albany, NY 12201-0509
  518/474-7148, Fax: /473-1733, kbh02@health.state.ny.us or kxg03@health.state.ny.us

• Great Lakes Regional Genetics Group (GLaRGG)

  328 Waisman Center; University of Wisconsin; 1500 Highland Avenue; Madison, WI 53705-2280
  608/265-2907, Fax: /263-3496, elbaum@waisman.wisc.edu
  http://www.waisman.wisc.edu/glargg/index.htmlx

  States served: Illinois, Indiana, Michigan, Minnesota, Ohio, Wisconsin

• Great Plains Genetics Service Network (GPGSN)
  http://mchneighborhood.ichp.edu/gypcdrom/903643781.html

  States served: Arkansas, Iowa, Kansas, Missouri, North Dakota, Nebraska, Oklahoma, South Dakota

• Mid-Atlantic Regional Human Genetics Network (MARHGN)

  Center for Human and Molecular Genetics; UMDNJ: New Jersey Medical School; Doctors Office Center, Ste. 5400; 90 Bergen Street; Newark, NJ 07103
  973/972-3302, Fax: -3310, rodriggi@umdnj.edu

  States Served: District of Columbia, Delaware, Maryland, New Jersey, Pennsylvania, Virginia, West Virginia

• Mountain States Regional Genetic Services Network (MSRGSN)

  Colorado Department of Health; FCHS-MA-A4; 4300 Cherry Creek Drive South; Denver, CO 80222-1530
  303/692-2423, Fax: /782-5576, joyce.hooker@state.co.us
  http://www.mostgene.org/index.htm

  States Served: Arizona, Colorado, Montana, New Mexico, Utah, Wyoming

• New England Regional Genetics Group (NERGG)

  P.O. Box 670; Mt. Desert, ME 04660
  207/288-2704, Fax: -2705, nergg@acadia.net
  http://www.nergg.org/

  States Served: Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, Vermont

• Pacific Northwest Regional Genetics Group (PacNoRGG)

  CDRC-Clinical Services Building; 901 E. 18th Avenue; Eugene, OR 97403-5254
  541/346-2610, Fax: -2624, ksilvey@oregon.uoregon.edu
  http://mchneighborhood.ichp.edu/pacnorgg

  States served: Alaska, Idaho, Oregon, Washington

• Pacific Southwest Regional Genetics Network (PSRGN)

  
  http://mchneighborhood.ichp.edu/gypcdrom/903708105.html

  States served: California, Hawaii, Nevada

• Southeastern Regional Genetics Group (SERGG)
  http://mchneighborhood.ichp.edu/gypcdrom/903650180.html

  States served: Alabama, Florida, Georgia, Kentucky, Louisiana, Mississippi, North Carolina, South Carolina, Tennessee

• Texas Genetics Network (TEXGENE)

  U.T. Health Science Center; 7703 Floyd Curl Dr.; San Antonio, TX 78284-7802
  210/567-5194, Fax: -5847, rosasd@uthsca.edu
  http://www.tdh.state.tx.us/texgene/texgene.htm

  State served: Texas

Other Groups

• National Health Information Center

  http://www.health.gov/nhic/

• National Organization of Rare Disorders

  http://www.rarediseases.org/

Genetic Syndrome Support Group Listings

http://members.aol.com/dnacutter/sgroup.htm