U.S. Department of Energy Human Genome Program  Projects in Ethical, Legal, and Social Issues    published October 1999

Foreword 1999 Projects Related Web Sites Completed Projects Completed Workshops Retrospective

Web Sites Associated with Projects in This Booklet

• Hispanic Role Model and Science Outreach Project

• Responsibility of Oversight in Genetics Research

• Science and Issues of Human DNA Polymorphisms

• High School Human Genome Program

• Intimate Strangers: Unseen Life on Earth

• Electronic Scholarly Publishing

• Science Training Initiative

• AAAS Congressional Fellowship Program

Other ELSI Web Sites

• Human Genome Project Information ELSI page

• Human Genome Project Information Gateways Web page, Choose "Ethical Issues."

• Legislative Activity in Human Genetic Research

• National Bioethics Advisory Committee home page. The bioethics committee offers advice to the National Science and Technology Council and others on bioethical issues arising from research related to human biology and behavior.

• Center for Bioethics, University of Pennsylvania. Full-text articles about such ethical issues as human cloning; includes a primer on bioethics.

• Eubios Ethics Institute. Site includes newsletter summarizing literature in bioethics and biotechnology.

• ELSI in Science. Teaching modules designed to stimulate discussion on implications of scientific research. 

• Genetic Privacy Act. Model legislation written with support of the DOE Human Genome Program.

• The Arc's Human Genome Education Project. Many good resources for families of people with genetic diseases, including fact sheets and Q&As.

• The Gene Letter. Bimonthly newsletter to inform consumers and professionals about advances in genetics and encourage discussion about emerging policy dilemmas.

• Your Genes, Your Choices. Booklet written in simple English, describing the Human Genome Project; the science behind it; and how ethical, legal, and social issues raised by the project may affect people's everyday lives.

Send the url of this page to a friend

Last modified: Wednesday, December 03, 2003

Home * Contacts * Disclaimer

Base URL: www.ornl.gov/hgmis

Site sponsored by the U.S. Department of Energy Office of Science, Office of Biological and Environmental Research, Human Genome Program