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Human Genome News Archive Edition

Human Genome News, Nov. 1994; 6(4):15

Consortium Principal Investigators and Research Plans

Wylie Burke (Fred Hutchinson Cancer Research Center and University of Washington, Seattle)

• Provide genetic counseling and DNA testing for the BRCA1 mutation in women from families with a risk for breast cancer. Examine alternative forms of counseling by genetic specialists and primary care providers.
• Gather information about reactions to genetic testing for breast cancer from women receiving "routine" health care and from providers of genetic services and primary care.

Mary B. Daly (Fox Chase Cancer Center, Philadelphia)

• Employ oncology nurses as primary patient counselors involved in DNA testing for BRCA1 in an ethnically diverse population.

Bonnie Flick (University of Utah, Salt Lake City)

• Study how adolescent girls are affected by BRCA1 testing of their parents.

Judy Garber (Dana-Farber Cancer Institute, Boston)

• Prepare teams of genetic counselors and nurses to educate and counsel families who have the BRCA1 gene; examine the impact of BRCA1 testing.

Karen Glanz (University of Hawaii, Honolulu)

• Study an array of factors that inhibit or motivate multiethnic Hawaiian residents to seek DNA testing for colon cancer susceptibility.

Gail Geller [Johns Hopkins University (JHU), Baltimore, Md.]

• Explore informed consent and develop a model protocol for use in BRCA1 testing.

Ellen Gritz (M.D. Anderson Cancer Center, University of Texas, Houston)

• Characterize the psychosocial and behavioral impact of DNA testing for hereditary nonpolyposis colon cancer.

Caryn Lerman (Georgetown University, Washington, D.C.)

• Study methods for educating and counseling women who seek DNA testing for cancer predisposition.

Gloria Petersen (JHU)

• Study social and psychological factors that underlie decisions about genetic testing among people with a family history of colon cancer.

Kathryn Taylor (Princess Margaret Hospital, Toronto, Canada)

• Focus on health-care providers who deliver information to patients seeking DNA testing; develop guidelines for disseminating health-risk information.

HGMIS staff

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Human Genome Program, U.S. Department of Energy, Human Genome News (v6n4).

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