Introduction to the Workshop
URLs Provided by Attendees
- Ethical, Legal, and Social Issues
The electronic form of this document may be cited in the following style:
Human Genome Program, U.S. Department of Energy, DOE Human Genome Program Contractor-Grantee Workshop IV, 1994.
Abstracts scanned from text submitted for November 1994 DOE Human Genome Program Contractor-Grantee Workshop. Inaccuracies have not been corrected.
Ethical, Legal, and Social Issues
Adjudication of Genetic Testing and Gene Therapy Evidence in Federal and State Courts
Franklin M. Zweig
The Human Genome Project: Information Management, Access, and Regulation
Development of Educational Materials for High School Biology
Joseph D. McInerney and Lynda B. Micikas, Biological Sciences Curriculum Study (BSCS)
A Hispanic Educational Program for Scientific, Ethical, Legal and Social Aspects of the Human Genome Project
Margaret C. Jefferson and Mary Ann Sesma
Human Genetics Education for Middle and Secondary Science Teachers
Debra L. Collins, M.S.; Linda Segebrecht, M.S.; R. Neil Schimke, M.D.
Assessment of Genome Education
Cheryl Dell, Ph.D., Diana DeVries, M.A., and Diane Baker, M.S.
International Conference Working Group: The Social Costs and Medical Benefits of Human Genetic Information
The Human Genome: Science and the Social Consequences
Charles Carlson, Randy Comer, Randall Fontes, Micah Garb, Glenn Gutleben, Anne Jennings, Mary Miller, Frank Millero, III
Human Genetics for Nonscientists: Practical Workshops for Policy Makers and Opinion Leaders
Mark Bloom, David Micklos, and Jan Witkowski
Student Sequencing Program
Leroy Hood, Maynard Olson
Involvement of High School Students in the Sequencing of the Human Genome
Maureen M. Munn, Maynard V. Olson and Leroy Hood
DNA Banking and DNA Databanking by Academic and Commercial Laboratories
J.E. McEwen and P.R. Reilly
Assessing Genetic Risks: Implications for Health and Social Policy
Lori B. Andrews, Jane E. Fullarton, Neil A. Holtzman, and Arno G. Motulsky
Impact of Human Genome-Derived Technology on Genetic Testing, Screening and Counseling: Cultural, Ethical and Legal Issues.
Ralph W. Trottier, Lee A. Crandall, Faye Cobb Hodgin, Mwalimu Imara, Ray Moseley, and David Phoenix
Social Science Studies of Privacy and Their Implications for Policy Choices in the Uses of Genetic Information
Alan F. Westin
Pathways to Genetic Screening: Molecular Genetics Meets the High-risk Family
Troy Duster and Diane Beeson
Genetic Privacy and Discrimination: What the Federal and State Government Are Doing, Aren't Doing, and Should Be Doing
Protecting Genetic Privacy by Regulating the Collection, Analysis, Use, and Storage of DNA and Information Obtained from DNA Analysis
George J. Annas, Leonard H. Glantz, and Patricia A. Roche
The Role of Patents in Technology Transfer in the Human Genome Project
Rebecca S. Eisenberg, J.D.